Privacy Statement of the International Vasa Previa Foundation, Inc.
We use personally-identifying information from users in various ways to further our charitable and educational objections. In order
to use our forums and chatrooms, users are required to register a profile. A profile contains the following: a username, password,
email address and (optionally) ICQ, AOL, MSN or YAHOO messenger user names. Your password is protected by an encryption program,
but no encryption program is used to protect the transmission of other information you submit to us. In addition, if you request
membership in the International Vasa Previa Foundation through IVPF@YahooGroups.com
or Vasa_Previa@YahooGroups.com, you may also
be contacted by email in order to request further identifying information regarding your experience with vasa previa. We may enter
any information you send (either as a profile or an email response) into a database to make available to researchers and administrators
of our organization for the purpose of furthering our objective of preventive diagnosis of vasa previa. All the information you provide
us through our profile forms and in response to any further email requests is stored securely offline. We do not disclose or sell any
personal-identifying information to anyone outside our Foundation without your express permission. Furthermore, you are not obligated
to provide any information, beyond the requirements of a profile, in order to utilize the forums, chat rooms or other information
available on our website.
Please remember that any and all information you choose to disclose in our forums and chat rooms becomes publicly known to all
other users in the forums and chat rooms as well as our moderators and administrators. Consequently, you should exercise caution
when deciding to share any personal information in the forums or chat rooms. Any user who finds material posted by another user
objectionable is strongly encouraged to contact us via the email address below. We reserve the right to remove or modify any data
submitted to our forums and chat rooms when we believe the post constitutes a violation of our policies and goals, whether stated
Our website may contain links to other websites and files. Once you access a link to another website, you are
to disclose there. Please note: we have no control over the content of other websites to which we may provide links and
cannot ensure those websites will not contain offensive or objectionable material. We reserve the right to remove links, as
we become aware of them, to material that we believe is inappropriate or contrary to our policies and goals.
Our forums and chat rooms give users two options for changing or modifying information you provide in your profile:
1. Users can login with their username and password to change information in their profile, and
2. In case of a lost password, users can send an email to the administrator at the email address below.
allowing you to login. If you have altered your browsers settings, you must turn the cookies option on in order to participate
in our forums and chat rooms.
If you need to change information you may have provided by email for our database, please contact the Foundation at the email
address provided below.
If you have any questions about this privacy statement, the use of information you provided, or any other comment,
please contact: email@example.com. If you send us an email, you should know that email is not necessarily secure against
interception. So, if your communication includes any sensitive or personal information, for which you wish to provide extra
protection, please contact us by postal mail or telephone rather than email. IVPF, 2109 5th Street, Moline, IL 61265, 267-790-6693.